I was diagnosed with Eale’s disease in the Spring of 2008 and had vitrectomy in June in hopes of regaining some of my vision that had been distorted. Before the initial onset of this eye challenge I had perfect vision. I am 33 year old, white male, relatively healthy. If you happen to have also been diagnosed with this really odd disease I would love to hear from you.
Disclaimer:
I have eale’s disease and although I do enjoy playing Doctor with my wife, I am in no way affiliated with any medical field, pharmaceutical company, etc, thus the advice you are getting from this website is from a patient. While I would not ask a brain surgery patient about their intricacies of their procedure it seems only right to find out something from other Eale’s patients as the professional medical field does not provide us with much useful beta other than a shrug of the shoulders and a scratch on their head. Do not get me wrong, it is not as if they are not trying there is just not that many of us to practice on.
Dawn Felton said,
December 26, 2008 at 11:41 am
My brother was diagnosed last year with Eales disease…..He has had surgery to regain a good bit of his sight. The doctor said that peoples of mostly India descent and the Mediterranean get this disease. My brother needs surgery again….he will lose his sight if he does not get the surgery. We are said to be half spanish / half American Indian. I have traced my ancestry and most of the professionals claim that there is nothing more than white European in our bloodline. Somewhere there must be a mistake. Oldest brother dark skinned, Middle brother Red skinned, and I am light to medium brown skinned. My brother will not talk about Eales disease much. He went to Jackson, Ms. for his surgery. Please continue to contact me ….I greatly appreciate your opinion. I have very little research on this subject.
Dawn
erareeve said,
December 27, 2008 at 11:14 am
What kind of surgery? I had a vitrectomy in June, and now we are playing the waiting game. I am originally from Jackson, so this is kind of interesting to me. Which Dr did he see?